An infant, just 5 months old is suffering from SpinalMuscular Atrophy since her birth. It is a rare genetic condition in which thepatient suffers loss of their skeletal muscles, necessary for movement. Themedical treatment of Tira Kamat requires Rs 22 crore but her parents could notafford the money.
Kamat's parents turned to crowdfunding. Many people fromacross the planet helped them by donating money to them. Now they havegenerated nearly Rs 16 crore for the treatment of their child. They say itreaffirmed their faith in humanity.
The union government also waived off Rs 6 crore as taxes.Priyanka and Mihir Kamat, the parent of the infant have took to socialnetworking to arrange money for the treatment of their child. Moreover, theyalso sought help from Impact Guru. It is a crowdfunding website.
CEO of Impact Guru was quoted by NDTV. He said, "Thisis a record-breaking campaign. Such a big sum has never been generated throughcrowd funding for a person. 87,000 people have donated at an average of ₹ 1750.This campaign brings hope to those who need money for medical treatment."
The parents also thanked donors. While talking with NDTV,they said they had planned so many things at the time of her birth but the raregenetic disease changed everything. Devendra Fadnavis, former Chief Minister ofMaharashtra also appreciated the government of India for helping the parentsand child by waving off taxes.
Fadnavis quoted by NDTV said, "This is a sensitivegovernment. The way they have taken the decision (to waive the taxes), they haveshown their sensitiveness."